Lepra Bangladesh advocacy update Summer 25

Promoting Meaningful Inclusion of people affected by leprosy

During 2024-2025, the Proyash project continued to promote the meaningful inclusion of people affected by leprosy in various programmatic activities. A total of 125 people (including 39 women) affected with leprosy-related disabilities participated in 26 workshops organised by Upazila health and family planning officers in collaboration with the Department of Social Welfare and other government departments. Held across different sub-districts, the workshops provided a platform for participants to share their challenges directly with high-level local officials. In total, 373 people participated, resulting in their increased access to healthcare services, disability benefits, widow allowances, and mobility aids such as wheelchairs and crutches.

The project also empowered people affected by leprosy as ‘Community Champions’, strengthening their roles as agents of change within their communities. A total of 105 people affected by leprosy participated in information, education, and communication campaigns, while 276 were involved in extended contact surveys. These significant roles have dual benefits in so much as they aise community awareness whilst at the same time enhance the social inclusion and dignity of people affected by leprosy.

The Proyash project provided targeted training to self-help group leaders. These sessions aimed to improve their understanding of leadership, rights, and access to the Essential Package of Care from Upazila Health Complexes. In total, 237 people affected by leprosy attended 23 training sessions, thereby increasing their capacity to claim healthcare services and government social entitlements.

Additionally, 87 people affected by leprosy participated in orientation sessions for medical officers and health staff. Through their presence and contributions to discussions a deeper understanding of patient needs was felt amongst health professionals. Furthermore, 73 people affected by leprosy participated in advocacy, awareness-raising events, and leprosy programme monitoring meetings at the district level—helping to combat stigma, elevate their voices, and ensure that programme delivery remains inclusive and responsive.

Furthermore, the Proyash project effectively engaged district authorities to distribute 350 blankets to people with leprosy-related disabilities, ensuring essential winter support and demonstrating strong coordination with local government. Additionally, 70 out of 149 eligible individuals (including 34 women) received government social entitlements through social welfare offices and union councils. These efforts reflect significant progress in linking people affected by leprosy to formal social protection systems, enhancing their dignity and wellbeing.