The facts:

Samastipur is a district in central Bihar in India. It has 7 of the country’s most endemic blocks of lymphatic filiarisis (LF) and leprosy. In 2015 we began a five year project to address the needs of those living with LF or leprosy and we are now entering our second year of the project.

The aim:

Over the course of the five years we plan to help improve the lives of 120,000 people (116,000 with LF and 4,000 with leprosy) living in poverty with either LF or leprosy. We want to help them lead healthier, more productive and self-sufficient lives.

What exactly are we doing?

We are taking an integrated and holistic approach tackling not just the health issues but looking at the stigma and prejudice associated with leprosy and LF too. We are doing this by:

  • running leprosy and LF awareness raising activities in 465 villages
  • facilitating hydrocelectomies (surgeries for men who have swollen genitals)
  • providing protective footwear to 20,000 people
  • starting up a network of LF patients in the area so they are able to advocate for their rights
  • training healthcare workers and doctors to better address the needs of LF and leprosy patients

Early detection is a big component of the Samastipur project. If people with LF and leprosy are able to get help at an earlier stage it will mean the likelihood of having to live with a permanent disability will be significantly reduced.

In order for us to detect cases earlier though, people need to feel they can come forward and that means reducing the stigma around these diseases so they feel they can. This is why it’s important to raise awareness through activities and by training our staff to recognise the symptoms.

What have we done so far?

We have had a successful first year in Samastipur getting our project off the ground. We hired 26 great staff members and set up our new offices in the region. As a part of that we’ve taken a wonderful group of women who will go out into the field and talk to people in the community hopefully finding those who may be too afraid to come forward for treatment.

We’ve also worked hard to get all of the right government papers in order so that the public health centres have all they need to start undertaking surgeries for those whose LF symptoms have become so extreme they require operating on.

In order to steer our work for this project effectively, we commissioned a survey to help us identify where the gaps are in healthcare services and also where the gaps are in knowledge when it comes to neglected diseases. See the results from our survey by clicking the button below:

Survey results

What's in store for a year or two?

Well, this is where we really get going and can start making a difference. Our counsellors will soon go out and spend time talking to men with hydrocele and their wives about having a hydrocelectomy to reduce this LF symptom. Over the five years we hope to facilitate 10,000 hydrocelectomies. The counselling should help to dispel any myths about it being a dangerous surgery so that more men with extreme genital swelling feel they can come forward for the corrective surgery.

Out of 7 public health centres in the area there are 5 we need to get set up with performing the surgeries so we’ll be talking to them in the hope that we can work together to help more people.

We’ll also be training staff and promoting self-care groups.

How can you help

In our first year we’ve made significant progress but we still have a long way to go to achieve all of our goals. We hope you’ll join us on this five year journey and keep up-to-date on our progress.

Donating just £15 could provide five people affected by LF with vital self-care kits including soap, oil, towels and disinfectant. These are so important in helping them reduce the painful symptoms they experience.

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