Living with leprosy: Taslima's real-life story
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In the centre is a lady smiling wearing a pale green patterned dress with a black head covering and a lanyard around her neck. Two women are stood either side smiling and a young boy is in the background.

Real life stories


Taslima's story

A lady smiling wearing a pale green patterned dress with a black head covering and a lanyard around her neck. A boy wearing a white shirt is standing in the background.

Taslima

In 2017, 20-year-old Taslima noticed a loss of sensation on her left little toe. For the previous five years, she was a community volunteer supporting people with leprosy and immediately recognised it as one of the symptoms.

Her diagnosis was confirmed by the local health complex where she was given a six-month course of multidrug therapy (MDT). Fearing rejection from the local community, Taslima took the medicine in secret. When family members discovered her diagnosis, she was grateful that they were supportive. Since completing treatment, Taslima has had no further complications.

“I am pleased that I noticed by my symptoms early and took the treatment.”

After her diagnosis, Taslima joined a local Self-Support Group (SSG) where she met with other people affected who shared their stories of recovery from the physical, social, emotional and financial impact of leprosy. Inspired by the support she received, Taslima received training to become a Community Champion and actively educated people on the symptoms of leprosy, helping to detect cases early, encourage treatment and ultimately prevent long-lasting disabilities.

“When I referred people to the health centre, and they were officially diagnosed that was a precious moment for me.”

As her skills developed, Taslima adopted the role of a Mental Motivator, providing support to those whose emotional wellbeing was impacted by their diagnosis.

“Life feels worthless without good mental health.”

Taslima went on to become a secretary of a SSG and later assisted in the formation of the Bogura Federation. The grassroots organisation brings together around 100 SSG’s which help community members to overcome the physical, emotional, social and financial impact of leprosy.

In 2024, Taslima was honoured to be appointed the first female leader of the Bogura Federation.

Taslima reflects on how her new position has made an impact personally and to the wider community:

"If I hadn’t taken on this leadership role, I would have never realised my inner potential or my level of self-confidence to do something impactful. Understanding the needs of those affected, standing by them in times of need, and advocating for their rights are all parts of this leadership journey. I feel proud to represent them.”

A highly respected community figure, in the same year, Taslima was appointed chairperson of the National Leprosy Programme and the Leprosy and Tuberculosis Control Centre. In July 2025, she will give a presentation at the International Leprosy Congress in Bali.

“I feel I have a lot of responsibility to the people here, so it’s important to speak on behalf of them on an international stage.”

Taslima stands as an inspiration to her community and beyond. By overcoming adversity, sharing her knowledge and support, she encourages more people affected to come forward for treatment, care, and to follow in her footsteps of leadership.

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