Forty years ago, Samija noticed her leg becoming swollen and painful which gradually worsened over time. Unaware this was a symptom of lymphatic filariasis (LF) or its implications, she sought treatment from a traditional healer whose methods involved cutting the skin on several parts of her leg over many years, resulting in a costly, painful and ineffective experience.
It wasn’t until thirty years on that Samija was officially diagnosed with LF when government health service staff visited her home and issued her medication. However, Samija felt uneasy about people knowing of her diagnosis and kept her condition a secret. Her family often took her to the traditional healer or hospital for anti-inflammatory medicines and painkillers, but there was no significant improvement in her condition.
Five months ago, a Lepra volunteer approached Samija and invited her to join a self-care practice group. Through her participation, Samija learned about self-care and the management of LF such as elevating and exercising affected limbs and the importance of hygiene in reducing swelling and preventing infection. Samija received a self-care kit and with continued practice her condition significantly improved. Meeting with other people affected who shared their stories of recovery helped to improve Samija’s emotional health and reduce social isolation and stigma.
Samija’s health is now much improved, and she is eager to share her knowledge and experience with others affected by LF.