When she first developed symptoms three years ago, she was afraid of prejudice so hid her condition from family members. Due to her community's misconceptions about the disease, Rekha avoided seeking medical attention, hoping the symptoms would just go away on their own.
Lepra’s ASPIRE project, in partnership with Canandia global health charity Effect Hope, aims to reach out to people like Rekha through active case-finding activities.
When Accredited Social Health Activists led a door-to-door detection campaign in Rekha’s village, they noticed visible symptoms and sensitively encouraged her to attend a Lepra health awareness meeting and a community-based group (CBG).
Initially hesitant, Rekha agreed after regular counselling and assurance of confidentiality and support.
After beginning a course of multidrug therapy, Rekha received ongoing support from an ASHA who advised her of the importance of completing the full treatment. Regular home visits monitored Rekha’s condition and provided emotional support. Reassurance was given to her and her family that leprosy is curable and once treatment has begun, there is no risk of futher transmission.
Upon attending the CBG, Rekha was warmly welcomed which reduced her feelings of isolation. There she learnt self-care practices to help wounds heal and prevent further injuries. The safe space gave Rekha the confidence to share her story and inspire others with symptoms to seek treatment. As time progressed, Rekha worked alongside ASHAs to identify people with early symptoms, encouraging them to attend awareness sessions or seek medical treatment.
“The support group and ASHAs gave me hope. Today, I stand confident, sharing my story so others don’t suffer alone like I did.”