Living with leprosy: Khaleda's real-life story
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Khaleda sitting outside on the floor stirring a cooking pot

Real life stories


Khaleda's story

Khaleda sitting outside on the floor stirring a cooking pot

Khaleda

Khaleda, aged 31, grew up in a remote village in Bogura, in a family struggling with poverty.

Because of financial hardship, she never had the opportunity to attend school and spent her childhood helping with household chores and caring for her siblings.

At the age of seven, an ulcer appeared on the sole of her right foot. As it worsened, people in the village began to spread rumours and superstitions.

Her parents took her to several local doctors and traditional healers, but none of the treatment worked. Khaleda later went to hospital, where she was diagnosed with leprosy and given a course of multidrug therapy.

Due to a long-lasting wound and prolonged infection, the bones below Khaleda’s ankle joint had become severely damaged and her foot could no longer support her body weight. Eight years ago, Khaleda was fitted with a leg brace which enables her knee joint to take the pressure, allowing her to stand and walk.

To further protect her feet. Khaleda wears custom-made footwear which safeguard against injuries that may otherwise go unnoticed due to loss of sensation caused by leprosy. The protective footwear, combined with the leg brace, help Khaleda to maintain mobility, independence and improve her overall quality of life.

During her leprosy treatment, Khaleda met Sajib who is also affected by the disease. Sharing similar experiences, they supported each other and later married.

The couple regularly practice self-care techniques to support the healing of existing wounds and prevent new injuries from forming. The practices help them to identify problems early and avoid further complications and disabilities.

Years of stigma and social rejection deeply affected Khaleda’s confidence and emotional wellbeing. However, her situation began to improve when she received mental health counselling support through Lepra. With compassionate guidance and support, she gradually rebuilt her confidence and regained hope.

The couple are now supported by Rupali, a voluntary ‘Mental Motivator’ who regularly visits them at home to provide emotional support and guidance on self-care.

Today, Khaleda continues to face challenges but remains determined to live with dignity and create a better future for their seven-year-old son. Her story highlights the importance of compassionate care, community awareness, and psychosocial support for people affected by leprosy.

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