He was unaware that leprosy was curable and that if treated early enough lasting disabilities can be avoided.
Ghanshyam’s symptoms were identified through a screening initiative as part of Lepra’s ASPIRE project in partnership with Canadian global health organisation Effect Hope.
An Accredited Social Health Activist (ASHA) recognised Ghanshyam’s visible symptoms and facilitated admission to a primary health care centre for diagnosis and treatment.
When Ghanshyam’s family learned of his diagnosis, they were frightened of the impact on the wider family but with support from the ASHA, they came to understand that leprosy is curable and is no longer transmissable once treatment has begun.
The ASHA provided emotional support to help Ghanshyam overcome the impact of his diagnosis. Ghanshyam was also encouraged to attend a community-based group where he learnt the importance of self-care in managing ulcers and preventing infection. Meeting other people affected by leprosy helped to reduce feelings of isolation. Through attending the group, Ghanshyam gained increased confidence and a sense of purpose. He felt empowered to speak openly about his diagnosis and to guide others.
“With the help of an ASHA and the support group, I understood that leprosy can be treated. Now I tell others, ‘Don’t hide- get help early like I did.’”