Frequently asked questions What does Lepra do? We are a UK registered international charity focusing on people who find themselves trapped by disease, poverty and prejudice and we help them to improve their health, lives and livelihoods. Driven by our focus on leprosy, our purpose is to enable children, women and men affected by neglected diseases to transform their lives and overcome poverty and prejudice. Working on the ground in India, Bangladesh and Mozambique we treat, educate and rehabilitate, and through this give a voice to people living on the margins of society. We work regardless of caste, religion or race. Our models draw on evidence gained through our 90 years’ experience and our approach to community engagement delivers real change to people’s lives. You can find out more by visiting our how we help page. What is leprosy? Leprosy is an infectious disease of the skin and nerves which, if left untreated, can lead to disability and blindness. It is always caused by bacteria called Myobacterium leprae. The bacteria multiply slowly, so the incubation period is about five years but can be up to 20 years. To find out more visit our leprosy page. Where does Lepra work? We are a UK based international charity, working on the ground in India, Bangladesh and Mozambique. Our UK office is: Lepra28 MiddleboroughColchesterEssexCO1 1TG Why does Lepra work in India? India is home to 17% of the world’s population and one third of the world’s extreme poor. Although people talk about India being a rich country, the scale of poverty is vast. The states in which we work are amongst the poorest areas in the world. Nearly 60% of the people newly diagnosed with leprosy live in India. The country accounts for 24% of the world’s total number of people with tuberculosis and 30% of lymphatic filariasis (LF). Bihar, an India State, has a population of more than 100 million. If this state was a country, it would be the third poorest in the world as 80% of the people live below the international poverty line. Bihar has 10% of the world’s LF and leprosy burden. Why does Lepra work in Bangladesh? Bangaldesh is the most densely populated country in the world, with a population of more than 158.5 million. There are just three doctors and three nurses per 10,000 people, so access to health care is incredibly difficult. In Bangladesh there are 1million people affected by lymphatic filariasis and 70million people at risk of contracting the disease. There are 3,000 new leprosy cases per year and 12% of these have grade 2 disability at the time of diagnosis. One third of the people live on less than US$1.25 a day (defined as extreme poverty). Why does Lepra work in Mozambique? Mozambique is one of the 20 poorest countries in the world and is one of the ten countries with the lowest score in human development. Two in three people live on less than US$1.25 a day (defined as extreme poverty). In Mozambique there are less than 4 nurses and doctors per 10,000 of the population, compared to the recommended 23 per 10,000. There are between 1,000 – 1,300 new leprosy cases each year with a high level of grade 2 disability at the time of diagnosis. There are 2 million people affected by lymphatic filariasis (LF) and 16million people at risk of contracting LF. How much of my donation goes to Lepra’s work opposed to administration costs? 85p of every £1 that is donated to Lepra goes directly towards our projects in India, Bangladesh and Mozambique. If you would like to find out more, visit our where your money goes page. Or for a more detailed overview take a look at our annual report and finances. What is Lepra’s registered charity number? Registered charity number 213251 (England and Wales) SC039715 (Scotland). When was Lepra launched? The British Empire Leprosy Relief Association (BELRA, Lepra’s former name) was launched at Mansion House in the City of London on 31st January 1924. You can read more about the history of Lepra here. I have raised some money for Lepra, where do I send it? Thank you so much for helping us to continue our fight against disease, poverty and prejudice. There are a number of ways you can get the money you have raised to us, all of these can be found on our ways to donate page. Don’t forget to tell us how you raised the money, we love to hear about our supporters’ fundraising efforts. How do I donate to Lepra? There are many ways you can give a donation to Lepra. Click on the links below to find out more about each one: One off donation Regular gift Post or telephone Fundraising Payroll Giving Online shopping ShareGift PayPal Collecting stamps What is Gift Aid? Gift Aid is a UK government scheme which makes your donation go further. Lepra can claim back tax on every donation made by a taxpaying supporter. How do I Gift Aid my donation? In order for Lepra to claim Gift Aid on your donation, you will need to complete a Gift Aid declaration form which can be downloaded here. I am no longer a UK tax payer and need to cancel my Gift Aid declaration. How do I do this? You can do this any time by contacting our Donor Support team and including the date you ceased paying income tax. You can call the team on 01206 216700 or email them at [email protected] Can I support you by Direct Debit from overseas? Yes, providing you have a UK bank account. If you don’t have a UK bank account you can set up a regular donation through a PayPal account. This can be done in GBP, USD and Euro. What date will my Direct Debit be claimed? Thank you so much for setting up a Direct Debit with Lepra, you’re regular support will help us to continue changing lives. Our Direct Debits are claimed on two dates when set up via telephone with our donor support team; on or around the 1st or the 15th of the month. If you set up your Direct Debit on our website, you can choose which day you would like this to be claimed. You will receive written confirmation (via post from Lepra or email from GoCardless our payment gateway) of your Direct Debit details including the date your Direct Debit will be claimed. (At least ten working days in advance of your first Direct Debit payment). Under the Direct Debit Guarantee, we will always contact you at least ten working days in advance if we need to make any changes to the way we administer your Direct Debit. I need to amend or cancel my Direct Debit. How do I do this? You can amend or cancel your Direct Debit by contacting our Donor Support team by calling them on 01206 216700 or email at [email protected]. You can also cancel your Direct Debit by contacting your bank. Whether you cancel your Direct Debit through your bank or through us, please ensure you contact the other party to confirm cancellation. Why do you prefer people to make regular gifts by Direct Debit? Regular gifts by Direct Debit mean that we have a consistent, predictable income, so we can plan and budget better and therefore be more efficient. Regular gifts also give long-term security and allow us to react to situations as soon as they arise. They also mean lower support costs and cheaper bank charges so that more of your money goes directly to the work we do. My address has changed. How do I let you know? Simply by contacting our donor support team by telephone 01206 216700 or email at [email protected] Please remember to include you previous address so we can find you on the database. How is Lepra regulated? Lepra is a registered charity in England and Wales (213251) and Scotland (SC039715). We are regulated by the Charity Commission and Office of the Scottish Charity Regulator (OSCR) who register and regulate charities. The Charity Commission ensure trustees comply with their legal obligations in managing charities and identify and investigate abuse and mismanagement in charities. To find out more about how charities are registered in the UK visit the Charity Commission and OSCR websites. How is Lepra governed? Lepra has a board of Trustees who are legally responsible for the activities that the organisation undertakes. The Trustees are all unpaid volunteers who are responsible for ensuring that Lepra abides by its charitable aims, works within the law, delivers it’s mission and monitors and evaluates effectively. Visit our Who’s who page to find out more about our Trustees. How can I ensure that I don’t receive telephone calls from Lepra? For new donors we operate an ‘opt-in’ policy which means that you shouldn’t receive any phone calls from Lepra unless you have requested to do so. If you have been a donor of ours for more than eight years and have supplied your telephone number we can confirm we do not share this with any third party; however we may telephone you for marketing purposes unless you have since opted out. We do not purchase any telephone data lists. How can I opt-out of unwanted emails from Lepra? We operate an ‘opt-in’ policy which means that you shouldn’t receive any emails from Lepra unless you have requested to do so. If you have changed your mind and would no longer like to receive emails from Lepra you can simply click the ‘unsubscribe’ link at the bottom of all of our email campaigns. Alternatively, you can choose to receive less or more emails per year by selecting the ‘updating your preferences’ featured on all emails. Or by contacting our Donor Support team on 01206 216700 or via email at [email protected] How do I advise you of a change of email address? You can do this by contacting our Donor Support team on 01206 216700 or via email at [email protected] Will Lepra pass on my details to other organisations? No, we never sell or swap supporters details with any other charity or commercial organisation. Is it possible for you to limit the amount of appeal mailings you send me? Yes. If you feel you are receiving too many appeals from us, then please let us know. You can reduce the number of appeals you receive or stop them all together. Contact our Donor Support team on on 01206 216700 or via email at [email protected] and let us know. Still can't find the answer to your question? If you can’t find the answer to your question, then just fill in your question and details on our [enquiry form] and we’ll get back to you as soon as we can.